Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users
نویسندگان
چکیده
منابع مشابه
Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users
BACKGROUND Data stored in personally controlled health records (PCHRs) may hold value for clinicians and public health entities, if patients and their families will share them. We sought to characterize consumer willingness and unwillingness (reticence) to share PCHR data across health topics, and with different stakeholders, to advance understanding of this issue. METHODS Cross-sectional 200...
متن کاملIntelligent Personal Health Record
Web-based personal health records (PHRs) are widely available to ordinary consumers at present, but the existing PHR systems have limited intelligence and can fulfill only a small portion of users’ healthcare needs. Previously, we proposed the concept of intelligent PHR (iPHR) to improve PHR’s capability and usability. By introducing and extending expert system technology, Web search technology...
متن کاملDesigning a Minimum Data Set for Major Thalassemia Patients: Towards Electronic Personal Health Record
Introduction: In advanced medicine, large amounts of data are produced. However, there is always a gap between their collection and their understanding and interpretation. Thus, the minimum data sets are prepared. Thalassemia major is a chronic genetic blood disorder and the most common genetic disorder in the world. So, the aim of this study was to determine the data set for personal health re...
متن کاملThe Personal Health Record
Many healthcare information technology (HIT) groups have demonstrated a growing interest in PHRs. Citing some examples of this interest among many are HIMSS’ inauguration of a PHR Steering Committee in 2006; HL7 developing PHR related use cases in 2007; The Markle Foundation convening a group of industry experts regarding PHRs in 2007; CCHIT assuming the task of certifying PHRs, with a major fo...
متن کاملUsability evaluation of a personal health record.
The electronic personal health record (PHR) has been championed as a mediator of patient-centered care, yet its usability and utility to patients, key predictors of success, have received little attention. Human-centered design (HCD) offers validated methods for studying systems effects on users and their cognitive tasks. In HCD, user-centered activities allow potential users to shape the desig...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: BMC Medical Informatics and Decision Making
سال: 2012
ISSN: 1472-6947
DOI: 10.1186/1472-6947-12-39